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Alliance pour la névralgie pudendale
Incroyable ensemble
SITE STILL UNDER CONSTRUCTION - Updated June 29, 2024
Anesthésique diagnostique transfessier
Blocage du nerf pudendal
The diagnoist anaesthic pudendal nerve block is just that: it is diagnostic only and doctors should use a long-lasting anesthetic (Bupivacaine) alone.
Regrettably, there are currently doctors and pelvic rehabilitation businesses who charge cash claiming a PN block is a treatment for pudendal neuralgia. Some give six injections six weeks in a row. There is great risk in inserting a needle next to the pudendal nerve week after week based on nothing and goes against science. The motivation is money. Sadly, due to the lack of doctors and treatments for pudendal neuralgia, those who suffer from the condition are often desperate and exploited for profit. Anyone seeking medical help or mental health help should do research on doctors and treatments and believe scientific studies over anecdotes and/or the opinion of one doctor. Doctors are human beings and just as fallible as any other.
Think of the doctors who overprescribed opioids for more than a decade. They knew their patients would become addicted and that many would die from that addiction. hey were corrupted by avarice. If a doctor prescribes you 200 oxycodone for post surgical pain, would accept the pills or would you find another doctor? The right answer is the latter.
Doctors researching any disease such as Alzheimer's, Parkinson's, cancer, ALS, MS, etc. are all using double-blind randomized trials to test possible treatments and cures. Why do pucendal neuralgia paitents hold doctors to such a lower standard? It is an unacceptable standard.
Do not let loyalty to a doctor or a false sense of safety and relationship with a doctor cloud the mind. Science is the only way to safe and effective treatments and a possible cure for pudendal neuralgia, not beliefs.
A real life example of how double-blind randomized clinical trials lead to a medical miracle, perhaps the most significant prevention of a disbiliating and deadly disease are those for polio in 1954.
A nonprofit organization, the National Infantile Paralysis Foundation, funded and thus directed the polio vaccine quest. Established by President Franklin D. Roosevelt’s former law partner, Basil O’ Connor, it raised money for polio research and treatment. . . . O'Connor gambled on Salk.
Clinical Trials
By 1953, Dr. Jonas Salk and his team had shown their experimental vaccine worked – first on monkeys in their lab, then on children who already had polio at the D.T. Watson Home for Crippled Children, and then on a small group of healthy children in Pittsburgh. One of the largest field trials in medical history soon followed.
It began on April 23, 1954. Some 650,000 children got the Salk polio vaccine or a placebo, and 1.2 million other kids received no injection but were monitored as an untreated control group.
In 1955, after a field trial involving 1.8 million Americans, the world’s first successful polio vaccine was declared “safe, effective, and potent.”
When asked who owned the patent to his vaccine, Jonas Salk famously replied that it belonged to the people and that patenting it would be like “patenting the sun.” [Sauk did not patent the vaccine and gave it to the world]. President Dwight D. Eisenhower expressed his belief that every child should receive the polio vaccine. 1
If it were 1965 and your doctor told you not to get the polio vaccine nor give it to your children because they did not believe in vaccines, would you listen to that doctor or to science? Would you be offended if someone criticized your doctor or would you find another doctor? Watch some videos of FDR and children in iron lungs.
An example of objective observation vs. bias and belief.
Galileo Galilei was prosecuted by the Roman Catholic Inquisition in 1633 for holding true the doctrine of heliocentrism where the earth and the planets revolve around the sun. He had made the observations in 1610 through a strong telescope which he created. The Catholic Church of course believed in the geocentric view that the Earth was the center of the universe and that all heavenly bodies revolved around the Earth.
Galileo came to his conclusion based on observation, not belief based on what the Church or pope or any authority figure claimed as true. He was not attached to an outcome. Galileo looked for an objective, observable truth. The Church wanted to believe what supported their beliefs based on their beliefs which served their purposes, that humans were the center of the universe and that they were the only true power on earth. To question them usually meant torture and death especially during Roman Catholic Inquisition.
In 1616 the Inquisition declared heliocentrism to be "formally heretical." In 1633 the Roman Inquisition found Galileo "vehemently suspect of heresy", and sentenced him to house arrest where he remained until his death in 1642. Do you believe the sun revolves around the earth?
If those of us in the 21st century are prevented and criticized to questioning even the most powerful people and intuitions as people were in the 16th century, pudendal neuralgia will continue to lack new “safe, effective, and potent” treatments and a cure, continue with doctors, unlike Sauk, who seek profit and charge immense amounts of cash often for administering fake treatments.
The pudendal neuralgia community must following in the footsteps of Sauk, Galileo, and the doctors researching Alzheimer's, Parkinson's, cancer, ALS, MS, etc. We should honestly be embarrassed by our adversity to science and incomprehensible adherence to disproven treatments and doctors who support them.
Examples of real science by doctors who follow science:
A Double-Blind, Randomized, Placebo-Controlled Trial of Bumetanide in Parkinson's Disease 2024 (thank you Michael J. Fox https://movementdisorders.onlinelibrary.wiley.com/doi/full/10.1002/mds.29726
A randomized, double-blind, placebo-controlled, parallel-group 12-week pilot phase II trial of SaiLuoTong (SLT) for cognitive function in older adults with mild cognitive impairment
A randomized, double-blind, placebo-controlled, parallel-group 12-week pilot phase II trial of SaiLuoTong (SLT) for cognitive function in older adults with mild cognitive impairment (posted on the Alzheimer's Association site/what is posted on the Pudendal Neuralgia Association site?) https://alz-journals.onlinelibrary.wiley.com/doi/full/10.1002/trc2.12420
Randomized, double-blind, placebo-controlled trial of rapamycin in amyotrophic lateral sclerosis (ALS) https://www.nature.com/articles/s41467-023-40734-8
A placebo‐controlled, double‐blind, randomized, two‐center, pilot trial of Cop 1 in chronic progressive multiple sclerosis https://www.neurology.org/doi/10.1212/WNL.41.4.533
Do the doctors who treat the disabling and deadly diseases listed above and the people who suffer from them ignore the conclusions of these studies? They pudendal neuralgia community probably would.
We will support and list any doctors in the U.S. who accept insurance and follow science. We will also continue try to find new doctors in the U.S. who will do the same. We hope to find at least 10 new doctors to train and perform depression surgery, implanting of peripheral nerve stimulators (PNS), and take new patients through all five of the Nantes Criteria, making sure to include the first, a physical exam which no pain management conduct in the U.S. (none that we have found yet) and the fifth, a positive anesthetic pudendal nerve block.
If your doctor is not following science print out the studies and feel free to copy and paste this page and print it.
1 Adding corticosteroids to the pudendal nerve block for pudendal neuralgia: a randomised, double-blind, controlled trial https://pubmed.ncbi.nlm.nih.gov/27465823/ (screen shot of study below)
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Pudendal Neuralgia Alliance
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