Support and Resources

No one can successfully navigate and come through emotional and or physical trauma without emotional support. Listed below are suggestions.

If you know of any resource not included please email the PNA.

Therapist - Therapists use talk and behavioral therapy. IIt can be helpful to speak to a professional trained in helping people cope with despair, anger, and other mental health issues that occur during the difficult years spent finding effective, compassionate medical treatment for PN. If you meet with someone and it doesn't go well, make sure to try another. Some are better than others and not everyone is a match in personality. This is usually covered by insurance.

Pain Therapist - There are therapists who specialize in emotionally coping with severe chronic pain. Again, If you meet with someone and it doesn't go well, make sure to try another. Some are better than others and not everyone is a match in personality. This is usually covered by insurance.

Psychiatrist - Psychiatrists are medical doctors, and thus they can prescribe medication. They are professional who can evaluate your mental health and often work in conjunction with your therapist. They focus on medication management. Medication is not for everyone, but is extremely effective. This is usually covered by insurance.

The American Chronic Pain Association (ACPA) www.acpa.org

This website is an excellent resource. They have support groups is most state. There are no Zoom meetings listed. We have emailed the association to ask if they could implement even a handful as many of us do not live in the cities where there is a support group. Also, the ACPA is publishing a book. You can email your story to them and possibly have it included in the book. It would be incredibly helpful to increase awareness about pudendal neuralgia. And there is much for to help those with chronic pain on the site.

Pudendal Neuralgia Facebook Groups

It takes most people with pudendal neuralgia (PN) years to find diagnosis. That means years of suffering extreme unknown pain, seeing doctors who dismiss the pain, often implying it is in one's head or that patients are outright lying. It also means years of isolation, in bed, after family, friends, co-workers, and bosses can no longer cope with one's never-ending odyssey to find the cause behind the mystery pain. .

There are Groups on Facebook where you can find others facing the same challenges as you. There you can message them and even talk to them if you decide to exchange number. With so little information about pudendal neuralgia available, so little awareness in the medical community, these groups are indispensable.

The names sometimes change and new ones added, so search "pudendal" to find all active PN groups:

Pudendal Neuralgia Treatment
Pudendal Neuralgia PNE Surgery
Advocates for Pudendal Neuralgia & Chronic Pelvic Pain Awareness
Pudendal Nerve Pain & Pelvic Floor Dysfunction Support
You Are Not Along Pudendal Neuralgia and Pudendal Nerve Entrapment
Pudendal Neuralgia Patient Support Group

Local Chronic Pain Support Groups in-person and via Zoom

Through your doctor, hospital or a search on the internet, you may be able to find a group or groups that meet to talk about how the live with chronic pain. There will probably not be another person with PN, but support is support and you may learn new techniques and skills. Most importantly, you will connect with others who will understand how you feel.

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Pudendal Neuralgia Alliance

contact@pudendalneuralgiaalliance.org

Paid for by volunteer until 501c3 status granted by IRS