Welcome! Bienvenue! Welina! Welkom! Willkommen! 환영!Bienvenido!

Benvenuto! Hoş geldin! Bem-vindo! いらっしゃいませ!

Pudendal Neuralgia Alliance was started by members of Pudendal Neuralgia Facebook Groups.

In the face of impossible struggles to find medical care for pudendal neuralgia, a group of us have organized

and created this website and a new 501c3 nonprofit to advocate for ourselves and create real change,

and significant improvements in the quality of pudendal neuralgia healthcare, its affordability for the everyday

person, and to increase awareness which is rare among doctors and the public.

Note: We are working to translate site into several languages but must raise funds first.

We are unique in that we are going to actively fund-raise to achieve our primary mission and list of objectives to significantly help those suffering from pudendal neuralgia. PNA is an all-volunteer non-profit and will maintain financial integrity through transparency through quarterly reports and an annual financial report.

This website is also intended to centralize information about symptoms and treatments of pudendal neuralgia to help women and men feeling pelvic floor and/or genital pain expedite their research and find help. Currently it takes an average of 4 years to find a doctor educated about pudendal neuralgia to accurately diagnose the condition.

People can lose their jobs taking off too much time for doctor appointments, which can lead to loss of a home a or car, which is especially devastating if someone is caring for children, a mentally or physically disabled family member, or elderly parent(s) who can no longer walk or suffers from Alzheimer's.

During the average 4 to five years of seeing doctor after doctor within different specialists who are unaware

of PN, there is a high occurrence of these physicians not treating these patients with respect or compassion,

telling them that their severe chronic pain is not real and in their minds. After years of hearing this, people will

believe these falsehoods, and with no hope, catastrophe can result.

In terms of physical risk, most women and men are misdiagnosed during these years, receiving no treatments,

or worse, receiving incorrect treatments and even unnecessary surgeries that could lead to injury of the pudendal nerve making the pain worse, possibly permanently, and/or causing physical harm to other parts of body.

The current situation within the medical system for those with pudendal neuralgia requires immediate attention.

"Never give in - never, never, never, never . . ."

Winston Churchill, London, October 29, 1941

VALUES

No one with pudendal neuralgia pain,

diagnosed or undiagnosed, should ever feel

ignored, ashamed, or mistreated.

The Pudendal Neuralgia Alliance is a coming

together of those with pudendal neuralgia,

their families, and friends, where empathy,

compassion, and support is available to all.

_____

Pudendal Neuralgia Alliance

contact@pudendalneuralgiaalliance.org

Paid for by volunteer until 501c3 status granted by IRS